SMA REACH UK collects data which is stored on an internet-based database for patients diagnosed with all types of SMA. The information collected about participating SMA patients includes their diagnosis and SMA management. All information will be collected during routine clinic visits at your normal clinical centre.
The purpose of this data is to help us understand more about SMA. This information will provide
If you would like to get involved with this study or would like further information, please speak with your clinical team at your next clinic appointment.
For a list of clinical site current taking participating in this study please follow the link below.
SMA REACH UK
UCL Great Ormond Street Institute of Child Health
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