SMA REACH UK (“we” “us”, or “our”) respects your privacy and is committed to protecting your personal data when using this website.
Personal data that we collect about you
Personal data, or personal information, means any information about an individual from which that person can be identified. It does not include data where the identity has been removed (anonymous data).
We may collect and use different kinds of personal data about you. This may include your name, contact details and email address that you provide by contacting us, requesting information or submitting an enquiry via the website.
What we do with the information we gather
The information we gather will be used for the purpose of responding to your questions and other requests. As it is in our legitimate interests to understand your needs , we use your personal data to address any comments or queries you may have.
Unfortunately, the transmission of information via the internet or email is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your information transmitted through the Website or over email; any transmission is at your own risk. Once we have received your information, we will take appropriate measures to safeguard your personal data against loss, theft and unauthorised use, access or modification. We will not sell, distribute or lease your personal information to third parties unless we are required by law to do so.
Sharing your personal data
Access to your personal information is limited to staff who have a legitimate need to see it for the purpose of carrying out their job at UCL. We do not transfer your personal data outside the European Economic Area (EEA).
The personal data provided when you contact us will only be stored up to such time we have achieved the service requested; at which time your data will be deleted.
A cookie is a small file which asks permission to be placed on your computer's hard drive. Once you agree, the file is added and the cookie helps analyse web traffic or lets you know when you visit a particular site. Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences.
Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.
You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. In some circumstances, this will prevent you from taking full advantage of the website.
Links to other websites
Our website will, in some circumstances, contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting these sites. These sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.
In the event that you wish to make a complaint about how we process your personal data, please contact us in the first instance at firstname.lastname@example.org and we will endeavour to deal with your request.
You also have the right to lodge a complaint with the Information Commissioner's Office (ICO) (the UK data protection regulator). For further information on your rights and how to complain to the ICO, please refer to the ICO website.
Questions, comments and requests regarding this policy are welcomed and should be addressed to email@example.com.
SMA Masterclass from Neurology Academy
If you are a consultant, nurse or allied healthcare professional working in neurology, the SMA Masterclass from the Neurology Academy is designed to advance your knowledge and equip you with the practical skills to support people living with SMA.
21 Sep 2023 - 22 Sep 2023
Location: Halifax Hall, Sheffield University Campus