SMA REACH UK
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    • Home
    • For Patients and Parents
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      • SMA REACH UK information
      • SMA REACH UK Centre
      • Physiotherapy
      • Study documents
    • Meet the Team
    • News and Updates
    • Contact
SMA REACH UK
  • Home
  • For Patients and Parents
  • For Researchers
  • Meet the Team
  • News and Updates
  • Contact

Privacy Policy

  

This privacy policy sets out how SMA REACH UK (“we”, “us”, “our”) uses and protects any information that you give SMA REACH UK when you use this website or contact us for service delivery via the email., SMA REACH UK is committed to ensuring that your privacy is protected. This policy sets out the basis on which we will process any personal data or usage information that you provide to us, in connection with your use of this website. Please read this policy carefully so that you understand your rights in relation to your personal data, and how we will use and process your personal data. If you do not agree with this Privacy Policy in general or any part of it, you should not access the Website. 


What we collect 

You provide information by contacting us via our Website/ email, we will collect some or all of the following information when you contact us 

• your name; 

• contact details; email address, telephone number 

• brief summary of why you have contacted us. 


What we do with the information we gather 

The information we gather will be used for the purpose of responding to your questions and other requests. As it is in our legitimate interests to understand your needs , we use your personal data to address any comments or queries you may have.


Security 

Unfortunately, the transmission of information via the internet or email is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your information transmitted through the Website or over email; any transmission is at your own risk. Once we have received your information, we will take appropriate measures to safeguard your personal data against loss, theft and unauthorised use, access or modification. We will not sell, distribute or lease your personal information to third parties unless we are required by law to do so. What security used via forms submitted on go daddy?


Sharing and storing your personal data 

The personal data provided when you contact us will only be stored up to such time we have achieved the service requested.; at which time your data will be deleted. Your data will only be stored via outlook email platform, UK until deletion.

Where we transfer your personal data to advisors outside the EEA, the transfer will be under the 


Complaints 

In the event that you wish to make a complaint about how we process your personal data, please contact us in the first instance at s.samsuddin@ucl.ac.uk and we will endeavour to deal with your request. This is without prejudice to your right to launch a claim with the Information Commissioner’s Office or the data protection supervisory authority in the EU country in which you live or work where you think we have infringed data protection laws. 


How we use cookies 

A cookie is a small file which asks permission to be placed on your computer's hard drive. Once you agree, the file is added and the cookie helps analyse web traffic or lets you know when you visit a particular site. Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences. 


We use traffic log cookies to identify which pages are being used. We use cookies to collect information about your browsing activities and your use of our services. This helps us analyse data about web page traffic and improve our website in order to tailor it to customer needs. We only use this information for statistical analysis purposes and then the data is removed from the system. 


Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us. 

You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. In some circumstances, this will prevent you from taking full advantage of the website. 


Links to other websites 

Our website will, in some circumstances, contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting these sites and these sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question. 


Contact 

Questions, comments and requests regarding this policy are welcomed and should be addressed to s.samsuddin@ucl.ac.uk.

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SMA REACH UK

UCL Great Ormond Street Institute of Child Health

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