SMA REACH UK
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  • For Patients and Parents
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    • SMA REACH UK information
    • SMA REACH UK Centre
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  • News and Updates
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  • More
    • Home
    • For Patients and Parents
    • For Researchers
      • SMA REACH UK information
      • SMA REACH UK Centre
      • Physiotherapy
      • Study documents
    • Meet the Team
    • News and Updates
    • Contact
    • SMA Fatigability Survey
SMA REACH UK
  • Home
  • For Patients and Parents
  • For Researchers
    • SMA REACH UK information
    • SMA REACH UK Centre
    • Physiotherapy
    • Study documents
  • Meet the Team
  • News and Updates
  • Contact
  • SMA Fatigability Survey

Study Documents

Study Documents

Study Documents

You can download all SMA REACH UK documents required to for participant recruitment. This includes the Protocol, Patient information Leaflets and Informed consent forms.

Study Documents

Physiotherapy

Study Documents

Study Documents

Details on the physiotherapy assessments collected with SMA REACH UK, guides and work sheets are available here.

Physiotherapy

UK centres

Study Documents

Register as a SMA REACH UK centre

We have over 15 neuromuscular centres involved in SMA REACH UK study. Details of these centres can be found here.

Neuromuscular centres

Register as a SMA REACH UK centre

Register as a SMA REACH UK centre

Register as a SMA REACH UK centre

If you are a neuromuscular centre across the UK wishing to participate in the SMA REACH UK study, please contact our Trial Manager at s.samsuddin@ucl.ac.uk

Treatments

Register as a SMA REACH UK centre

Treatments

There are now three treatments available for patients with SMA. More information can be found a:


Nusinersen https://www.nice.org.uk/guidance/ta588 

Onasemnogene abeparvovec (Zolgensma) https://www.nice.org.uk/guidance/hst15 

Risdiplam https://www.nice.org.uk/guidance/ta755  

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Latest News and Updates

Zolgensma Treatment Updates from Health Professionals


New SMA REACH article publication on 

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