You can contact the team for all SMA REACH UK documents required to for participant recruitment. This includes the Protocol, Patient information Leaflets and Informed consent forms.
Details on the physiotherapy assessments collected with SMA REACH UK, guides and work sheets are available here.
We have over 15 neuromuscular centres involved in SMA REACH UK study. Details of these centres can be found here.
If you are a neuromuscular centre across the UK wishing to participate in the SMA REACH UK study, please contact our Trial Manager at s.samsuddin@ucl.ac.uk
There are now three treatments available for patients with SMA. More information can be found a:
Nusinersen https://www.nice.org.uk/guidance/ta588
Onasemnogene abeparvovec (Zolgensma) https://www.nice.org.uk/guidance/hst15
Risdiplam https://www.nice.org.uk/guidance/ta755
Travel Expense Claim form for SMA REACH UK events.
Please complete and email the completed copy with evidence of travel to ich.smareachuk@ucl.ac.uk.
Copyright © 2022 SMA REACH UK - All Rights Reserved.