You can download all SMA REACH UK documents required to for participant recruitment. This includes the Protocol, Patient information Leaflets and Informed consent forms.
Details on the physiotherapy assessments collected with SMA REACH UK, guides and work sheets are available here.
We have over 15 neuromuscular centres involved in SMA REACH UK study. Details of these centres can be found here.
If you are a neuromuscular centre across the UK wishing to participate in the SMA REACH UK study, please contact our Trial Manager at email@example.com
There are now three treatments available for patients with SMA. More information can be found a:
Onasemnogene abeparvovec (Zolgensma) https://www.nice.org.uk/guidance/hst15
SMA REACH UK
UCL Great Ormond Street Institute of Child Health
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Zolgensma Treatment Updates from Health Professionals
New SMA REACH article publication on
Revised Hammersmith Scale for spinal muscular atrophy: Inter and intra-rater reliability and agreement
Webinar with Graeme O’Connor on a recent pilot project on amino acid diet