Data from SMA REACH UK is often utilised for academic research projects. Follow this link for further details involving the SMA REACH UK consortium.
The SMA REACH UK network includes many academic and clinical researchers interested in completing audits on SMA. Additionally, commercial companies may be interested in accessing the UK data via SMA REACH UK.
Before any data is shared, a proposal will need to be submit for review by the SMA REACH UK steering committee.
If you are interested in accessing SMA REACH UK data and will like further information, please email ich.smareachuk@ucl.ac.uk
At SMA REACH UK, we are always keen to collaborate with other networks and initiatives nationally and internationally.
If you are interested in collaborating us, please contact us at ich.smareachuk@ucl.ac.uk
Th SMA REACH UK publication policy outlines the publication and collaboration policies.
It also outlines the process for translating SMA REACH UK assessments.
Section 1: The process for obtaining data from the SMA REACH UK database
and acknowledgement of SMA REACH UK in publications
Section 2: The use of SMA REACH UK associated assessments in
research studies external to SMA REACH UK.